Ever since the FDA removed the black box warning on menopausal hormone therapy, LOTS of women of a certain age have been prescribed estrogen patches. SO MANY WOMEN are wearing patches, in fact, that MANUFACTURERS cannot keep up. YOU GUYS. Ugh.
If you are someone like me who is SUPER SENSITIVE to hormonal shifts, this especially terrible. Not only do I need a patch to feel human, I also really only like ONE PARTICULAR PATCH. You might think that as long as I get a patch with my prescribed dose of estrogen, then I would be good, since, medically, the patches are all the same, right? WRONG. Different patches have different kinds of adhesive and absorb differently. When I tried the Sandoz generic, my symptoms all came rushing back. My dod said I'd level out in 1-2 weeks, but, right now, most pharmacies are only filling one month of patches at a time because of supply chain issues, and they are filling whatever brand they can get. So this means, every 4 weeks, I need to plan 1-2 weeks to adjust to a different patch since I can't know which one I'll get and then start over every month? WHAT. I would be more willing to deal with a switch if I were getting 3 months at a time.
I spent 2 hours going from pharmacy to pharmacy last week trying to track my brand down (I have found that it is better to speak to someone in person, and women pharmacists-- especially women my age and slightly older-- are more knowledgable and sympathetic about the situation and also more willing to dig around in their computers for a bit longer). NO LUCK.
I asked my bro friend Chat to look around on Reddit and tell me which patch was most like the one I love, and he was like sorry dude. There are no matches. Well, there are matches in terms of shape and size, but even the one that look alike make women feel different. BAH.
Finally, I called my OG pharmacy back and asked for the name brand version of the patch I love. The bad news is that is costs $250 a box and my insurance will not pay for it. The good news is that no one else is dumb enough to pay that kind of money, so there are plenty in stock.
(I thought about the tip in the NYT article above to get a bigger dose and halve or quarter the patch, but the one I like is teeny tiny, so this seems hard. I could get a dedicated patch cutter cricut though LOL/not LOL)
(Also that tip is bullshit and not something middle-aged men would have to do if a hormone therapy were prescribed en masse for them. Factories would, like, retool overnight to make their patches, and docs wouldn't be like oh whatever, just quadruple your dose and then divide it by 4 and you'll be fine probably. Waiting at a CVS counter the other day, I saw a WHOLE SHELF of testosterone in various delivery methods. Boo hiss.)
Switching generic patch brands is not like just getting the Target brand generic ibuprofen when you usually take the Walgreens brand-- I wish it were!
Also did my yearly mammogram-- so many middle aged delights.
I'm on oral HRT, would that be an option for you or does it need to be a patch? (I actually don't know if there's a shortage of oral HRT or not, I don't think there is, but maybe it's different in Canada)
ReplyDeleteDaria here. Also using a patch and it’s itchy as a mofo. Doc said- it’ll pass. Somehow I got the three months. Just glued my third one yesterday. Not really seeing a lot of difference re: moods but they said it takes a while. Progesterone is making me sleepy.
ReplyDeleteMy doc did mention the supply and demand issues with those patches before she prescribed them. Such bull.
Oof. Every once in a while I wonder if I should be on HRT, but then I read something like this and realize I don't want the hassle. I do know it works amazingly well for people... I guess people who are lucky enough to get the right patch at the right time. Agreed that if this were for men, there would be NO issues. Hrumph.
ReplyDeleteIt has never not been a hassle to be a woman, is what I am learning as I get older.
ReplyDeleteI've had the same issue. My skin can only tolerate the tiny version of the patch that has to be changed 2x a week. The pharmacy in my neighborhood (full of middle age women) was backordered, but when the (female!) pharmacist called around she found there were 217 (!!!) in stock at a pharmacy 2 miles away that happens to be in affiliated with a university. Apparently very few SMU students need estrogen patches... now I have my Rx filled there and I haven't had an issue the last 2 refills.
ReplyDeleteA friend is in medical sales and she said she heard the supply issues were getting better, hopefully that will be true for your brand soon!
Solidarity, sister. Women's health is not a priority. Down with the patriarchy!
ReplyDeleteI so agree that women’s health is a much lower priority. Boo. My rant is that for this of us 20 years older we didn’t get HRT at all. One poorly done study showed a link to breast cancer and estrogen replacement so for 2 decades it was taboo. Finally someone realized that this tidy was very poorly done and biased but in the meantime our generation suffered hot flashes, night sweats etc but most importantly BONE LOSS. Good luck with your patches.
ReplyDeleteI've been fortunate to not notice hormonal differences across brands but the quality differences have been INSANE. For awhile during a shortage I got stuck with a super shitty brand that didn't stay on for more than a day or two at best, and of course if it falls off, the instructions say to start over with a brand new patch, and then switch AGAIN once the week is up! Insurance will not cover that! INFURIATING.
ReplyDeleteThis reminds me of the Seinfeld episode about Elaine and the sponge, except way less funny. I'm sorry you are dealing with this. I have dealt with a) medication shortages for my kiddo, which SUCK and b) insurance companies/doctors trying to prescribe me a different OCP because it is "the same" when IT IS NOT THE SAME. So I feel you. Hormones are messy mofos and while it SUCKS to have to pay out of pocket for the name brand, I'm glad you found a solution. Hopefully it will carry you through until you can build up a little stockpile of the generic???
ReplyDeleteIn a full circle moment, I am putting to use the skills learned during COVID to find my son’s ADHD meds for my HRT needs. Said son is now in college, but my - pharmacy call, in person stop in, mad dash to get doc to send prescription to the right pharmacy - remains the same!
ReplyDeleteOh goodness, what a pain in the ass. I wish it had been declared safe to use HRT when I was your age, but I’m my age and not sure how much it will help me at this point. However, I’m jumping on the bandwagon and becoming part of the problem. Or, I’m trying. Appt with doctor is next week.
ReplyDeleteIt sucks SO HARD when supply chain issues interfere with getting something you need to feel healthy and moderately sane (MODERATELY. THat's all we ask for, and it's still too much!)
ReplyDeleteYou are so right - if men needed HRT, there would be a solution OVER NIGHT! It’s ridiculous. I am so sorry you’re dealing with this supply chain issue.
ReplyDeleteMay I ask what symptoms you had before you went on HRT?